NEWS and LINKS

The National MPS Society, Inc.
For more detailed information on MPS and ML, check out www.mpssociety.org

Star 94 Article on Erin - Click here

Sunday Mornings on B98.5 - interview with Stacy Click here to hear Stacy's radio interview on 98.5

Genzyme Therapeutics:
www.genzyme.com
(rare genetic disease program)

Biomarin Pharmaceutical:
www.biomarinpharm.com
(developing enzyme therapies)

National Organization of Rare Diseases: www.rarediseases.org
(rare disease information and links, legislative issues and other information)

National Institutes of Health:
www.nih.gov
(information about the individual institutes and the research that is being conducted and supported by the NIH)

United States Library of Congress: http://Thomas.loc.gov
(information including proposed legislation, laws that have passed, House and Senate information, links to your Congressman and Senator as well as e-mail addresses)

Make-A-Wish:
www.makeawish.org
(grant the wishes of children with life-threatening illnesses to enrich the human experience with hope, strength and joy)

The National MPS Society- walk/5k run 2001 :
www.mpssociety.org
(History of the National MPS race as well as information on additional sites)

Hideandseek.org
www.hideandseek.org
(In 2004, parents, scientists, business leaders and philanthropists came together to establish The Hide & Seek Foundation, in order to dramatically increase the funding of research into Lysosomal Storage Diseases which include all the MPS disorders. Find out how you can become involved in The Hide & Seek Foundation and help end the suffering caused by Lysosomal Storage Diseases )

OnYourFeet
www.onyourfeet.wordpress.com
Blogging site for education and health professionals to share ideas to get students out of their seats and “onto their feet!”

As information on additional races becomes available, we will list all the locations and websites.